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CORONAVIRUS DISEASE 2019 (COVID-19)
& AUTISM RESOURCES

The following is a list of websites, articles, and fact sheets which offer information about helping individuals with autism and related disabilities during a COVID-19 outbreak. This page will be updated periodically as the situation evolves and new resources are published.

GENERAL COVID-19 RESOURCES

“Coronavirus Disease 2019 (COVID-19) Situation Summary”
Centers for Disease Control and Prevention (CDC)

"Coronavirus Resources"
Interagency Autism Coordinating Committee, U.S. Department of Health & Human Services

"Disability considerations during the COVID-19 outbreak"
World Health Organization

“Autism and COVID-19”
Autism Science Foundation

“Coronavirus: Response & Resources”
The Autism Society of America

“COVID-19 Information and Resources”
Autism Speaks

"COVID-19 Resources for People With Disabilities, Families, and Service Providers"
The Arc

RESOURCES FOR FAMILIES & CAREGIVERS


“Supporting individuals with autism through uncertain times”
School of Education and Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill

"Pandemic emergency planning for families of children with disabilities"
Marisa Howard-Karp and Julie McKinney, Exceptional Lives

"Caring for children and adults with autism during COVID-19"
American Psychological Association/Autism Speaks

"Advice for caregivers of children with disabilities in the era of COVID-19"
American Psychological Association

"Coping during the COVID-19 Pandemic: Yale’s Guide for Families with Children with Autism Spectrum Disorder" 
Yale Child Study Center

“COVID-19 and Autism: Tackling Social Skills for Children with Autism during Social Distancing”
Icahn School of Medicine at Mount Sinai

“COVID-19 Resources for Families”
National Autism Association

"5 Coronavirus Coping Tips for Parents of Children on the Autism Spectrum"
Johns Hopkins Medicine

“How to Talk About COVID-19 with People Who Have Autism”
NPR Health


“How to Explain a Global Health Crisis to Children with Autism”
Katherine K.M. Stavropoulos Ph.D., Neuroscience in Translation, Psychology Today

“Coronavirus Response for Families With Autism”
Autism New Jersey

“COVID-19: Preparation Tips for Families Affected by Autism”
Assemblyman Angelo Santabarbara, Times Union

Parent/Caregiver Guide to Helping Families Cope With the Coronavirus Disease 2019 (COVID-19)”
The National Child Traumatic Stress Network

"Supporting Children With Autism During the Coronavirus Outbreak"
Child Mind Institute

RESOURCES FOR INDIVIDUALS WITH AUTISM

"A Self-Advocate’s Guide to COVID-19: Basic Covid-19 Information By And For People With Disabilities"
Green Mountain Self-Advocates

"COVID-19: Simple COVID-19 Coronavirus Test" (Social Story)
Massachusetts General Hospital for Children

My Hospital Test: Drive-Up Nasal Swab –For Those With Symptoms"
Boston Children's Hospital

"Important Things to Know about COVID-19 (Coronavirus)"
Lurie Institute for Disability Policy, Brandeis University

EDUCATION RESOURCES

“Coronavirus (COVID-19) Resources”
Massachusetts Advocates for Children


”Special education rights and coronavirus (COVID-19)”
Moor, Perlman & Gregg, LLC

“Questions and Answers on Providing Services to Children with Disabilities During a COVID-19 Outbreak”
U.S. Department of Education

"Addressing the Risk of COVID-19 in Preschool, Elementary and Secondary Schools While Serving Children with Disabilities"
U.S. Department of Education

"Supporting Students with ASD at Home During COVID-19"
University of Louisville, Kentucky Autism Training Center

PREPARING FOR A HOSPITAL OR MEDICAL VISIT

“COVID-19 Coronavirus Testing Toolkit for People with ASD/IDD”
Massachusetts General Hospital for Children

"COVID-19: Simple COVID-19 Coronavirus Test" (Social Story)
Massachusetts General Hospital for Children

"My Hospital Planning Packet: Prepare for a hospital visit during the COVID-19 pandemic"
Boston Children's Hospital

“Disability COVID-19 Forms: Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at Hospitals”
Ballan, M. & Perri, C., Stony Brook University

“Health Care Passport” (A comprehensive health care briefing form that could accompany an individual with an intellectual and developmental disability to hospital)
University of South Florida

"Preparing your child with autism for a hospital visit during COVID-19"
Boston Children's Hospital

TELEHEALTH SERVICES & COVID-19

“COVID-19 ABA Updates: Implementing Telehealth for ABA in the current environment”
Autism Insurance Resource Center, UMass Medical School Shriver Center

"Telehealth and HIPAA during the COVID-19 nationwide public health emergency"
U.S. Department of Health and Human Services Office for Civil Rights

COVID-19 & AUTISM IN THE NEWS

"Pandemic means Americans with disabilities aren’t getting the services they need"
May 11, 2020
PBS NewsHour

"A time of unprecedented fear for parents of adults with intellectual and developmental disabilities"
April 3, 2020
Caitlin Gibson, Washington Post

"Americans With Disabilities Are Terrified"
April 3, 2020
Elaine Godfrey, The Atlantic

“Helping autistic kids cope with the chaos and uncertainty of coronavirus"
March 17, 2020
Jackie Spinner, Washington Post

STATE-SPECIFIC RESOURCES

KANSAS

"The Preparedness Lifestyle. How to Plan for Seasonal and Pandemic Flu and Other Emergencies for People with Disabilities"
The University of Kansas

MASSACHUSETTS

"Coronavirus Update for Individuals and Families (Massachusetts)”
Department of Developmental Services, Commonwealth of Massachusetts

“Special Education Services in Massachusetts during COVID-19 Questions and Answers”
Massachusetts Advocates for Children

Family Resource Toolbox for Families with Children with Disabilities
Massachusetts Department of Elementary and Secondary Education

"As Outbreak Spreads, State Says Mass. Public Schools Must Educate Students With Disabilities"
Max Larkin, WBUR


NEW JERSEY

“Coronavirus Disease 2019 (COVID-19) Guidance For New Jersey Community Providers of Services for Individuals with Intellectual and Developmental Disabilities”
New Jersey Department of Human Services, Division of Developmental Disabilities (DDD)

“COVID-19 Guidance for Individuals and Families of Individuals with Intellectual and Developmental Disabilities (New Jersey)”
New Jersey Department of Human Services, Division of Developmental Disabilities (DDD)

Frequently Asked Questions on DDD Closures Related to COVID-19 for Individuals, Families and Providers (New Jersey)
New Jersey Department of Human Services, Division of Developmental Disabilities (DDD)

AUTISM AND GRIEF

A resource for anyone supporting autistic individuals in their grief and loss
"Supporting individuals on the autism spectrum coping with grief and loss through death or divorce"
Marci Wheeler of the Indiana Resource Center for Autism

A resource for talking about death with adults with I/DD, for professional caregivers
"Talking End of Life" online toolkit
Roger Stancliffe and a partnership of Australian universities (2018)

A webinar for clinical pastoral professionals
“Supporting People with Intellectual and Developmental Disabilities through Grief and Loss
Bill Gaventa and Meggie Kobb from the Association for Clinical Pastoral Education (2016)

Social stories and wordless books
"My Special Person Died" Indiana Resource Center on Autism

A collection of free, downloadable wordless books on COVID-129 for discussing with nonreaders, from the UK company Books Beyond Words

Pieces written by autistic individuals reflecting on their own grief
“Bereavement and autism: A universal experience with unique challenges
Elizabeth Graham
The Arc Autism Now Project (2014)

"A Spectrum Son's Tribute to his Mom"
Sam Farmer
The Asperger/Autism Network (undated)

"Autistic grief is not like neurotypical grief"
Karla Fisher (2012)

Resources for anyone on grieving in the time of COVID-19
"On-Demand COVID-19 Programs"
Hospice Foundation of America

 







 


 
 
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